← Return to CAR-T cell Therapy: Joint and muscle pain

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@pgollinger

Hi Mary
I am participating in a clinical trial to have Car T as a frontline therapy for MM. I had the infusion in October. I had two mild fevers while hospitalized for 14 days. No other CRS. No neurotoxicity. I am also having lower back pain. Not sure why. An X-ray didn’t show anything. I have had two bone marrow biopsies since infusion, one in January and the next in April. Both came back MRD negative. I’m hopeful for a long remission but I’m high risk due to deletion of p17 and high tumor load. I’m not on any maintenance therapy per the trial. I hope your husband is in remission and his neurotoxicity resolves. I believe Car T is one of the best current treatments for MM. I wish him well.
Pat G.

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Replies to "Hi Mary I am participating in a clinical trial to have Car T as a frontline..."

Thanks Pat. Yes, CAR-T is a blessing! My husband is also high risk with 17p deletion, and (11,14)translocation. It's a journey, but I'm glad to hear you are RMD negative. So far we are too!

Have you changed your diet?