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EB-N5 and Idiopathic PN: Long-term Usage?

Neuropathy | Last Active: Sep 25 11:37am | Replies (39)
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@ray666

Good morning, Debbie!

I’ll be sure to post updates if and when I’ve got any that might be meaningful to others. Those of us with PN hope so hard for a fraction of relief with each new suggestion we hear about (I’m as hard a hope-er as the next fellow), whether the suggestion is for a pair of spring-loaded walking shoes or an untested intergalactic gene therapy available only online. I was hoping for the best, or if not the best, then at least some reportable improvement in my PN, when my neurologist suggested I give EB-N5 a try. For a year and a half, I kept careful track of my PN symptoms (possible improvement? possible setback?), hoping I’d reach some conclusion about EB-N5 when my sepsis infection came along, totally masking my PN symptoms. That’s why I posted yesterday. I had hoped I might find another PNer who is a long-term user of EB-N5 and who might be willing to share what their experience had been like.

As always, Debbie:
Cheers!
Ray

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Replies to "Good morning, Debbie! I’ll be sure to post updates if and when I’ve got any that..."
bjk3 | @bjk3 | Jul 5 11:48pm

Good Evening, Ray ~
What a complicated and mysterious path these conditions of ours present. I hope somewhere in the Mayo readership there are folks who can give you some feedback on their long-term experiences with EB-N5.
As an update here, in June I decided to buy a BEMER (BioElectroMagneticEnergyRegulation) system in order to have a daily investiture in my PN treatment (in addition to PT every other week). It was a huge decision, taking several months, but I am confident and at peace with the decision, now that it has been made. Its website can explain its workings better than I, so I won't go into all that. I've been using the original, older model on loan since January. This new model has many more delivery discs, making it more efficient and adaptable.
I'm so glad you've turned the corner successfully on that sepsis issue. Healing seems to take so much longer on these senior bodies. The more experiences I hear about, though, the more I am encouraged to find that there is not necessarily only one way to attain that healing.
May we all find - and recognize - what it is that will help each of us!
Blessings on you and yours!
Barb

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