← Return to Anyone have side effects after Lanreotide injection?

Discussion

Anyone have side effects after Lanreotide injection?

Neuroendocrine Tumors (NETs) | Last Active: Nov 2 6:47am | Replies (35)
Comment receiving replies
@meandmysis

The lanreotide injections did not do what the oncologist had hoped for my sister. They are starting her on chemotherapy infusions Monday. She is having the Folfox aka the 5fu chemo drug. Has anyone heard of this or been given this chemo treatment for PNET?

Jump to this post

Replies to "The lanreotide injections did not do what the oncologist had hoped for my sister. They are..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 4 9:14am

Hello @meandmysis

Yes, we have had several members who have used Folfox. I will invite some of them to this conversation, @bnjncrew (her husband was given Folfox) and @tomhayes54 and there are others, I'm sure

How is your sister feeling now?

VIEW AND REPLY
bnjncrew | @bnjncrew | Jul 6 5:44am

My best to you. My husband did Folfox for 6 months. He had difficulty eating so several small meals/snacks daily is good. The nutritionist had him start drinking Fiji water as it has electrolytes and minerals more than others and that really helped but it is very expensive. This treatment did reduce the size of his tumors significantly but he stopped due to significant neuropathy. He had less side effects from CapTem but that stopped working for him. He has just finished the 4 cycle treatment of Lu 177 radiation treatments and is doing well.

VIEW AND REPLY