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EB-N5 and Idiopathic PN: Long-term Usage?

Neuropathy | Last Active: Sep 25 11:37am | Replies (39)
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@dbeshears1

Thanks for sharing the update Ray, and for the fair warning that we have to be careful jumping to conclusions when there are so many other variables that interfere with a proper analysis. Keep us updated and keep ahead of this thing!

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Replies to "Thanks for sharing the update Ray, and for the fair warning that we have to be..."
Ray Kemble | @ray666 | Jul 4 11:05am

Good morning, Debbie!

I’ll be sure to post updates if and when I’ve got any that might be meaningful to others. Those of us with PN hope so hard for a fraction of relief with each new suggestion we hear about (I’m as hard a hope-er as the next fellow), whether the suggestion is for a pair of spring-loaded walking shoes or an untested intergalactic gene therapy available only online. I was hoping for the best, or if not the best, then at least some reportable improvement in my PN, when my neurologist suggested I give EB-N5 a try. For a year and a half, I kept careful track of my PN symptoms (possible improvement? possible setback?), hoping I’d reach some conclusion about EB-N5 when my sepsis infection came along, totally masking my PN symptoms. That’s why I posted yesterday. I had hoped I might find another PNer who is a long-term user of EB-N5 and who might be willing to share what their experience had been like.

As always, Debbie:
Cheers!
Ray

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