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@kylebar

I am sorry to hear that your husband has GBM. My husband was diagnosed April 1, 2022 with it and passed away July 17, 2022. It was difficult watching him decline. GBM is a tough cancer to deal with. I keep reading that some improvements are being made in the way they treat it but it still is a very aggressive cancer and I am sure you know the outlook isn’t good. I actually grew up in the Austin area. I live in Chicago now. I wanted to take my husband to MD Anderson in Houston to see what they might have been able to do but he was in no shape to travel. He had been having some symptoms for a few months before he was diagnosed. When they finally diagnosed it, it was pretty bad. He actually had two tumors and he had a craniotomy but the doctor didn’t remove any of the tumors because he said they would just grow back and probably more quickly. So we only radiation and chemo for treatment. I personally think the radiation killed him quicker. He went downhill so fast after the radiation was started. Plus he didn’t have the better receptors for the chemo so the chemo did little I think. Sorry to be such a downer but you wanted to know other’s experiences. Ours was not good but some do have better experiences from what I have read. One thing I will say….dont argue or get upset with him about anything now. He is going through a lot. Just be there for him and comfort him as much as possible and be supportive. I wish you the best.

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Replies to "I am sorry to hear that your husband has GBM. My husband was diagnosed April 1,..."

Hi,

Thanks for responding. I’m so sorry to hear about the course of the disease for your husband. I understand it’s a possibility. I am so thankful we found a neurosurgeon who was willing to operate and who did an excellent job. That bought us time to get to MD Anderson, where I hear they can employ all kinds of tricks in these dire cases. We have a 16-year old so I’m remaining positive for her sake. Your advice to not argue or get upset is a good reminder for me, thank you. I will take that to heart and enjoy the time we have left.

Best, Nina

( to kylebar) My heartfelt condolences for the loss of your husband. So quickly. Thank you for the good advice. I will try with all my might to be as supportive as possible.