@idontgidontgetit2024 - Your angst is obvious in your post and I'm sorry for all your travails and discomfort.

Often the key to solving medical riddles is, first, to ask the right question. You have posed your question along the lines of, "scar tissue development which is affecting your spine and other areas.". Maybe there is a different and broader question that could help lead you to some understanding and maybe even a solution?

Have you ever seen a physiatrist? I didn't know of this specialty until I wound up in the spine diagnostic process where I had lots of negative data (MRIs, x-rays, anecdotal evidence) but several conflicting diagnoses.

A physiatrist was brought in and helped untangle the complicated and sometimes vague data. These are pain specialists and they often end up dealing with spine and back issues. I liked the idea the doctor had no particular orientation relative to surgery or not. He was only focused on understanding the causes of my many symptoms.

In the end, I took his advice, 15 months later that advice has proved to be sound, and I'm on the road to a better future. Maybe you would benefit from a physiatrist consult? Have you tried that strategy?