← Return to 18 year old battling stomach issues - what should I do?

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@jwool89

Oh wow I never heard of this and I am sorry you have suffered so long. Ours is called Alpha-1 Antitrypsin Deficiency and it affects mostly lung and liver but also many other organs in the body. Not technically autoimmune but there are similarities. All of the women with this gene in our family have lost their gallbladders. My issues are esophageal & just discovered I have a small hiatal hernia on top of severe asthma/allergies/sinus. My daughter has severe stomach pains after eating, sometimes gas & bloating. Diarrhea only sometimes. Also major sinus issues. She has been off dairy one week and I am suspecting lactose intolerance. What is the test for that? She has been allergy tested and is not celiac. As for me inflammation is my biggest problem (I get a lot of pain in neck & shoulders). I am still trying to figure out what foods cause it in me the most. Mayo Clinic is allergy testing us both end of July & very happy we are both visiting GI too. I now know how impossible it is to see GI.

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Replies to "Oh wow I never heard of this and I am sorry you have suffered so long...."

Did your daughter have an endoscopy to rule out celiac? For the lactose intolerance, you might try NOT ANYTHING with lactose, it sneaks into many foods and medicines. Or, try using Lactaid, it supposedly cancels out the lactose, I don't know, hey, thanx, you reminded me of something I DO NOT HAVE, that seems rare. On the severe gas after eating, I suffered with that as far back as a teenager. I got to a point that I didn't even want to go on a date, if a meal was involved. I learned about Activated Charcoal years ago and I am never without it. It's cheap, zero side effects, no bad taste.. but it needs to be taken away from any other meds, cause it will be trying to absorb the gas and the meds too. I take 3-6 capsules depending on how bad the pain is. Drink lots and lots of water with it, you need to get it down to your stomach as fast as you can, you don't want it dissolving in your throat or esophagus. I use a heating pad too. I had horrible period cramps, my mom had me use it, curled up with a pillow and, this is a weird one, keep your/hers feet warmer than usual. I don't know why this helps but it does. Tell your daughter I will swap my 💩CIC for her diarrhea, at least for a few weeks we could both get a break. 🤪I have no idea what you're family alpha-1 ...is, I will read up on it. Inflammation, I think, plays havoc in almost every aspect of our body troubles. Ginger, turmeric/curcumin are all good but, I have learned it really needs to be pharmaceutical grade and very reputable company. I add ginger plus Phenergan for my nausea from migraines, it helps... but again lots and lots of water. Don't take it if you feel like you really might 🤮, it 🔥coming out your mouth. My hubby started Krill Oil, Kirkland brand at Costco, 500mg 1x daily, he has noticed that it's helping with his inflammation. He rarely uses any supplements ever, so for him to get a benefit from this means something, I am going to try it, after my parathyroid surgery is over, I just can't add anything else to my body right now. Oh, you mentioned that you have a hiatal hernia, me too. My dr said leave it be if it is not causing problems, I was skeptical....then I read a post here, 2-3 different people had surgery for it and maybe another problem, anyway their stories were pure HORROR. The fix involves attaching body parts to the stomach or esophagus and their stories scared me far away from surgery. I had an inguinal hernia at 16, very odd for a teenager and even odder for a female. But it was nothing like the hiatal surgery. Pain in your neck and shoulders, why is food involved? Have you had a recent MRI? I have primary Sjögren's syndrome, it causes a lot of joint pain, whole body. It also has been causing my discs in my neck, other places too, my discs are disintegrating, bone spurs (osteophytes) are on the C-4,5,6 vertebrae in my neck. Best I can find has been a very intelligent and gentle chiropractor, heat, never reach out, high, or low, the pain shoots through my neck and arms like being electrocuted. I have seen 5 completely different chiropractors, who knew there was such a huge difference in treatments. Shelley