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Bone turnover markers (CTX and P1NP): do you have a baseline?

Osteoporosis & Bone Health | Last Active: Oct 5 5:35pm | Replies (183)
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@esb13

Thank you! It never occurred to me Tymlos might not work. Oy. Do you have data on percent of people who are no better off after two years of full dose nightly
Injections? I have had great hope this will be an effective treatment. I will try to stay positive for sure! Thank you.

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Replies to "Thank you! It never occurred to me Tymlos might not work. Oy. Do you have data..."
hopefullibrarian | @hopefullibrarian | Jul 3 9:58pm

I can't cite any studies or data on the number of people who find Tymlos doesn't work for them, or who have had underwhelming results. Based on what I've read from members of this support group who've shared their experience, it works well for almost everyone, though to varying degees. There's a thread started by @katwhisperer earlier this year that might be helpful for you.
https://connect.mayoclinic.org/discussion/disappointing-results-would-you-continue-or-skip-2nd-year-of-tymlos/
No matter what the number of people who don't respond to Tymlos treatment, it's good to track your progress to make sure you're not one of them.

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