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Will I remain a mystery?

Digestive Health | Last Active: Aug 28 3:59pm | Replies (28)

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@hyrulewarrior

Hello everyone! I wanna thank you all again for your kind words and helpful advice, this all has been very hard for me especially being a young woman, I feel it’s very hard for me to be taken seriously. The appointment went about as expected, I do not mean to sound so rude but that man is so arrogant it reeks off him, he kept twisting so many things and I’m very thankful I had advocates with me as I almost shut down at points, the way this DR spoke to me when I tried to correct him was just insane to me. That aside he was of no help and when I asked why I wasn’t being treated for Gastroperisis he had the nerve to tell me “no you are” and then listed my new anxiety med I JUST STARTED given by my psychiatrist NOT my GI, I haven’t looked super far into it but I do not think Busprione is going to be a valid gastropersis treatment with the severity of my symptoms and I NEED something to help motility in my stomach and intestines/colon. This was of course brushed off immediately and wasn’t answered in detail. I’m definitely still frustrated and am leaving this GI, I’m not sure when or if I will be able to but he did do one thing i appreciate, he is referring me to the Mayo Clinic. I pray I will be able to be seen there, I live almost 2 hours away but it would be everything to me. I will update this thread further if anyone would like me to but again I have no clue when I will be seeing a GI again, praying soon, and current GI really is no help. You all have helped so much however and i appreciate it! I will be getting to an endocrinologist asap based on what everyone has said, along with asking for other tests etc, bless you all!! You’ve helped this young girl out so much 😭

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Replies to "Hello everyone! I wanna thank you all again for your kind words and helpful advice, this..."

I am so very sorry for you. Dr.s are arrogant narcissists. I am so glad your advocates were there for you. They must be wonderful people. If a Dr. sees psych meds, they will use it against you. There is a new drug for motility, called Motegrity. I have used it 2x, the headaches were worse than the CIC. So I don't know if it works. Back to motility...smooth muscles are part of the problem as well as the autonomic nervous system. My ex-GI had the gall to tell me he doesn't work with the ANS... I was so dumbfounded that I said, ok and hung up the phone. Have you tried Linzess, Amitiza, or Trulance? Look them up. I have been on all of them, they were useless for me.

Please let me know what you find out at Mayo and if they really helped you.