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@sadies1mom

I am Floridian also and I was so surprised about mayo Jacksonville since I am a patient here I I have a patient number. They will not take a patient with Mac disease. Apparently they don't have enough doctors who are specialized in it. I did go to Mayo Clinic in Minnesota. You can get an appointment there; but it's inconvenient. I've been treated by a Doctor Who was at Vanderbilt and is now at Saint Thomas in Nashville who spent his first 10 years in Minnesota mayo. He is really exceptional. But it was an infectious disease doctor in Tampa who was so fantastic at giving me so many tips for treating the disease . Within one hour she was able to tell me probably 20 things to do for myself – practical things that are extremely effective. So the doctor does matter.

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Replies to "I am Floridian also and I was so surprised about mayo Jacksonville since I am a..."

I , like you , live in the Tampa area. I , like you, was unable to get an apt. with Mayo. in Jacksonville. Can you share with me who the Dr. was you saw in Tampa? So are you living in Tampa and travel to Nashville? I have been recently diagnosed with MAC and am terified of starting the anti-biotics. Thanks for any help you can share.

Can you share the practical things you are doing that are effective??
Thank you.....all the best
Marie