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Anyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: Jun 26 9:14am | Replies (61)Comment receiving replies
Hello @genovaldi and welcome to the NETs support group on Mayo Connect. There is an article on this topic from Mayo Clinic. Here is a quote:
"This medicine may increase your risk for heart and blood vessel problems, including hypertension and a slow heartbeat. This may cause chest pain or discomfort, headaches, dizziness, or blurred vision. You might need to measure your blood pressure at home. If you think your blood pressure is too high or if your heartbeat is too slow, call your doctor right away."
Read more here https://www.mayoclinic.org/drugs-supplements/lanreotide-subcutaneous-route/precautions/drg-20071321.
@gsm13161 @allan2022 @gneiss50 @californiazebra @ginnyos @amandafl may also have experiences to add.
As you are new to this discussion group, please share a bit about your history with NETs. For example, how long ago were you diagnosed. What treatments, other than the monthly injections, have you had?
Replies to "Hello @genovaldi and welcome to the NETs support group on Mayo Connect. There is an article..."
@hopeful33250
I had a neuroendocrine on the tail of the pancreas removed in 2017. A yearly followup MRI in late December of 2025 showed small mets to both lobes of the liver. I have had four injections of Lanreotide & have for the last month had high blood pressure including being sent to the ER ny my PC physician. My cardiologist had upped my blood pressure medication & I see her again in two weeks. Just concerned about damage to heart & blood vessels. Wondering about other medications available if this becomes difficult to deal with.
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I was diagnosed in 2023, this was all found on accident as I was involved in a car accident and when I had an MRI they found a tumor on my tail bone. I had a boner biopsy and was confirmed cancer. after the gallium scan is when they found everything. I had no symptoms the only one was pain in my intestine and that is where the primary tumor is. I have stage 4 grad1 . the only treatments I had are my monthly Lanreotide. Starting back in February is when i was prescribed octreotide. Been at this for a year and half now. I have my ups and downs otherwise I feel ok