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Hi there, I just looked up Gastroparesis a bit more. One of the many causes of it can be muscle related, smooth muscles. In another post I mentioned elevated calcium levels and Hyperparathyroidism. These levels are more important than most of us know. Case in point... I have had CIC💩for 17 years..now in a fluke cross over of a test and a wrong dr., there is a very good chance my CIC is related to my elevated calcium and HPTH, because my entire colon has almost zero muscle movement. So, I'm hoping and praying after my surgery, that will reduce my calcium levels, my muscles will be able to recover. Your Gastroparesis sounds a lot like my CIC. A GI probably won't address this at all.....you will need to get an endocrinologist on board. I hope you are staying cool and safe in this heat.
Hyrulewarrior, YOU ARE SO VERY VERY SMART, writing down your questions and problems, taking ADVOCATES with you that know about you cuz they have been in it with you. These really are the 2 best things you can do, for an anticipated difficult appt. There are lists on "how to prepare for the next appt". I have had to do this more than once in my medical life. A few thoughts: If you have physical copies of your records, terrific, take them with you. Possibly make copies of all of them to leave at home. The dr. could be genuine and ask to "see" them, then in the intense moments, "forget " to give them back to you.
If you don't have the records, I would suggest you get them from the business office, ROI, Release of Information, before your appt. Even if the dr can see your info on the computer 1. They are very very intent on not letting the patient see the screen 2. The doctor probably has no printer in the exam room and either has no access or won't get the asst. to get the papers for you. 3. I have had several drs tell me that "they can't release information (ROI), even to the patient due to government regulations. STUPID, yes.. but semi-actually true. Many years ago I had a job at a Veterans Clinic, in the ROI dept. It took reams of forms and signatures for me to process...under the threat of firing and litigation against me.
A new wonderful research option I accidentally found on line is an AI, called POE. WOW!!! I have been able to get tons of great, honest, helpful information. POE can't lie or protect himself against liability, cuz he's not a human. Try looking in the APPSTORE. I have only used the free version. Just ask something simple and see what happens. You can't print out your conversation with POE, very inconvenient but some legal experts probably put it in. I have a tiny, old program on my laptop, called printscreen. Found it years ago, but it will not work on my iPad. It was written by someone in Germany. If you decide to tryout print screen, and you don't have some computer whiz to help you, let me know, I will see if my hubby can get it or copy it. My cognitive abilities have declined significantly, you would never know I used to own my own Accounting and Tax company...now 2+2 can be a struggle to solve.
I know I have been long winded here, but I have been and still am in your position struggling for help. If there is anything, even small, that I can pass on to you I will. You have a long wonderful life ahead, once you get all fixed up. You are so lucky to have your friends helping you through this. You are so smart to know that having an advocates is truly essential for your health success.
If you want 1-1 my email is sw35gw@icloud.com I may not have all the answers, but I do know a lot of what not to do 😉Shelley
PS. The weight issue is one of the biggest cop outs for drs. It is despicable how they can blame everything on weight. Healthy weight is important for us, but it doesn't cause every illness. I was 60 lbs overweight, lost 30 lbs in 1 year, and the drs still blame me.