Hi again. Thanks for coming back to me. I’m sorry to learn how much this
is affecting your social life. You’re far too young to have to deal with
this. I only drive short distances and this is because I sometimes have
such strange sensations in my legs I feel as if they could cramp at any
time and I’ll go in the back of somebody. As soon as I get into the
drivers seat I start to get anxious. I’m sure that this makes things a
whole lot worse. Do you find that you have more energy in the mornings. I
do. I start each day full of optimism but by early evening my legs start a
dull ache. It usually passes before I go to bed and I sleep well. Two
years ago it was found I had protein in my blood and I was diagnosed with
MGUS. (It’s a pre cancer of the bone marrow) I now have to have my bloods
done every few months. There is a chance that my symptoms could be due to
that (CIDP) although the neurologist says he’s absolutely sure it’s not.
Like you I miss my old self and spend ages looking at photos of when I was
‘normal’. It’s impossible to explain to people what the pain feels like
but it’s just as if I’m ploughing through mud. I get so exhausted that I’m
scared I won’t pick my feet up and I’ll end up falling over. That hasn’t
happened yet. Where are you in the States? I’m in Los Angeles right now
staying with family. I have another appointment with my neurologist in
August but I don’t expect any answers. Do you think it could be MS or
Myositis? They seem to tick all the boxes. Lots of people have had muscle
aches after the Covid vaccine so that’s another possibility. I’m going to
keep on walking and also exercising on the static bike to keep up muscle
tone. Keep up with your PT. I see a Chiropractor every week. I do
exercises for spinal stenosis. It can’t do any harm! Please write back.
We can help each other through this and we have to keep positive. A few of
the people who have replied did make a complete recovery. Take care xx