Hello @ louisejewell. I was on Libtayo for 2 years and 4 months for metastatic SCC starting in my ear. I have been off for over a year and still no sign of cancer. My last met was in kidney and lymph nodes and all disappeared.
The tired feeling seemed to increase over time for me. The other annoying side effect was a decrease in appetite because food started to taste differently. Even off the drug for this time I still find foods that just don’t taste the same to me. It has been hard to maintain my weight. Those are pretty minor issues to deal with considering my cancer has been eliminated by this drug. I will gladly go back onto it if/when my cancer returns.
I hope your experience is positive with Libtayo. If you have any questions please let me know.