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Leg Weakness and Mobility Issues
Autoimmune Diseases | Last Active: Jul 7 3:40pm | Replies (58)Comment receiving replies
Oh my goodness I feel for you. I have been searching on this site for somebody who shares my condition and your description of what has happened to you is virtually identical to my current situation. I have been slowly getting worse over the last 6 months but started having issues in October 2022. Do your leg muscles twitch? Mine started twitching after a bad cramp in my inner thigh which was excruciating. After that my legs began twitching almost constantly. Like you I can’t walk more than half a mile before my legs become exhausted. They seize up from the buttocks down. When I’m sitting watching tv or just tottering around the house I’m absolutely fine but as soon as I leave the house to go ‘walking’ within minutes I’m in pain. Like you have seen a neuro surgeon, had a full MRI on my back and seen a rheumatologist. Like you no explanation can be found. I’m 61 and before this was fit and healthy playing tennis 3 times a week. My life has changed dramatically and I’m desperate to find answers. I’ve Googled myself to death and had to see a therapist for anxiety. I’m in the UK by the way, you?
Replies to "Oh my goodness I feel for you. I have been searching on this site for somebody..."
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Thank you for sharing! I'm so sorry you're dealing with this, you're not alone. I too have Googled everything, seen countless doctors, completed so many tests in hopes of receiving a diagnosis only to have normal/negative results back. Part of me wants something to come back positive, just so I can finally have an answer and figure out a treatment plan, but I'm also thankful tests are coming back negative.
About twitching, maybe a few times a day a part of my leg will twitch randomly for several seconds (almost always a part of my thigh) but nothing constant. Weakness/lack of endurance/no full range of motion with my legs are my main issues. I too can walk around the house a bit, but driving, walking at a normal pace/further than even around 100 steps at once is impossible. I'm in the United States. My rheumatologist is passing me on to a neuromuscular dr, so I guess that's my next step, though she said it's going to take months to get an appointment. In the meantime, I'll keep up with PT.
Curious have you also had to stop driving, lost a good amount of your social life, and can no longer really do the things you love? I'm not sure if you feel this way, but I'm constantly grieving my old life. I'm here for you! Keep me posted on any findings for yourself.