Pain in hands, arms and shoulders with pNET stage 4

Posted by justme54 @justme54, Jun 21 11:23am

Has anyone else with PNET stage 4 experienced extreme pain in hands, arms and shoulders? This started up about a month ago and trying to find something that may help with the pain. I can only get about 2 hour stretches for sleep.

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katinka58 | @katinka58 | Jun 21 1:09pm

My husband has pain in his shoulder joints & he said mainly on the right side

justme54 | @justme54 | Jun 21 9:52pm

In reply to @katinka58 "My husband has pain in his shoulder joints & he said mainly on the right side" + (show)

was there any medication that helped it?

katinka58 | @katinka58 | Jun 22 8:24am

He takes Gabapentin if it gets bad enough, he tries to deal with it as this medication makes him sleepy

ce1b | @ce1b | Jun 26 9:02am

My pain was caused by a statin I was taking for glucose control. The doctors also took me off my metformin as it was not compatible with the lanreotide injections.

You may want to check your other meds for interactions.

Colleen Young, Connect Director | @colleenyoung | 3 days ago

@justme54, have you and your team found something that helps with the pain?

justme54 | @justme54 | 2 days ago

In reply to @ce1b "My pain was caused by a statin I was taking for glucose control. The doctors also..." + (show)

Thanks

justme54 | @justme54 | 2 days ago

In reply to @colleenyoung "@justme54, have you and your team found something that helps with the pain?" + (show)

They believe my pain is caused by inflammation because my CRP/C reactive Protein is over 2. something. So far it is still a work in progress but better taking prednisone and Percocet. Will let you know if it changes again.