Forteo weight gain & no bone improvement

Posted by slowsly @slowsly, Jun 20 12:02am

I’ve been on Forteo for 6 months. I have gained about 13 lbs and my lastest DEXA shows my bones have gotten worse. Has anyone had a similar experience?

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I feel like a broken record but will repost. Every OP medication's guide I have looked at contains this statement.

"Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088." Don't complain if you do not report the weight gain.

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I was only able to be on Forteo for 6 months as well. Had a coupon till then. Now I can't afford it and insurance doesn't cover specialty drugs!
I also have gained weight around my mid section and hips! Haven't had another bone scan since stopping Forteo. I have severe osteoporosis and arthritis. My bone pain is very unpleasant! I wish these meds were more affordable! My husband makes just over the income limit to receive any kind of help.
Good luck to you and your journey!

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I’m on Tymlos since June 2023 and gained about 20# plus belly fat in the first 6 months of treatment. Not a reported side effect during the trials but now being reported. You are not alone. Have to weigh some extra weight vs fractures.

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@ymv

I’m on Tymlos since June 2023 and gained about 20# plus belly fat in the first 6 months of treatment. Not a reported side effect during the trials but now being reported. You are not alone. Have to weigh some extra weight vs fractures.

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@ymv, can I ask if your food intake increased while on tymlos. Is it something we can try to control? I'm trying, at the moment, to get approval for it. Ty

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@rola

@ymv, can I ask if your food intake increased while on tymlos. Is it something we can try to control? I'm trying, at the moment, to get approval for it. Ty

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Yes it increased and I had sugar cravings. But, for me, Tymlos was the only option as I had 2 spontaneous fractures while on Prolia

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@ymv

Yes it increased and I had sugar cravings. But, for me, Tymlos was the only option as I had 2 spontaneous fractures while on Prolia

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Thank you for the heads up. Hoping I can battle this side effect similar to when I quit smoking. Take care.

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