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Will I remain a mystery?

Digestive Health | Last Active: Aug 28 3:59pm | Replies (28)

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@isadora2021

Hello hyrulewarrior - I am so shocked to read what you’re going through despite all the tests and hospitalisation. That’s absolutely dreadful. I’m not surprised you’re at the end of your tether.

What do you mean your GI Doctor tried not to confirm you have gastroparesis, that you’re not being treated for it and that you’re only being treated for GERD despite what you’re going through. All incredibly bizarre. It’s almost like your GI Doctor believes you’re imagining things and doesn’t want to feed your delusions (in his eyes).

I would definitely be going back to your GP to work out the next step. I remember a friend at university years ago had had dreadful gastro problems since she was a child and they were getting worse. They eventually discovered part of her colon was deformed with weird loops so poop was getting stuck etc. I wish I’d paid more attention but she had surgery and her conditioned improved immeasurably. I wonder if something like that might be causing your problems too 🤔

There has to be an answer!

Please do talk to your GP and make a new plan. Your current GI Doctor clearly isn’t helping to get to the bottom of the mystery.

All the best
Isadora

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Replies to "Hello hyrulewarrior - I am so shocked to read what you’re going through despite all the..."

@hyrulewarrior - I’ve been reading up about Gastroparesis and it sounds exactly what your symptoms are. Mayo has material but I’m not allowed to post links here. It seems it’s not always possible to identify a cause and it also seems not to be curable but manageable. I am totally shocked your GI Doctor isn’t working with you to treat it as there seem to be a number of treatment options to try. You absolutely need to see your GP and get a second opinion. Please keep us posted.

Hi hyrulewarrior and Isadora,
Also, make sure you get copies of all labs done by both doctors, and their notes. Keep them. This way whoever you see in the future will already know what has been done. Always keep all test results and doctor’s notes on diagnoses.