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Aspergillus after Bronchiectasis/MAC
MAC & Bronchiectasis | Last Active: Jul 8, 2024 | Replies (22)Comment receiving replies
The only info I have said treatments for aspergillus are still in experimental stages because not much attention has been paid to treating. Also stated that only 27% chance of successful treatment and patients like us, MAC and bronchiectasis, are high risk. Being close to 70 makes me think treatment probably not worth side effects, etc. Is this info incorrect? Very hard to get complete information, it is like “do it yourself” healthcare here.
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@churlgurl What Rick said I will say “ditto that.” Aspergillosis is treated with Vfend or its expensive alternative Cresemba. Cresemba is a once a day pill whereas Vfend is twice daily. The thing with aspergillosis vs MAC is that aspergillosis is way more treatable/curable than MAC so don’t lose hope ! You are not on your own here. The correct ID doctor can get you on the correct med. Arikayce can cure MAC and Vfend or Cresemba can cure aspergillosis. I am not being a Pollyanna, but whoever told you drugs for aspergillosis are in the experimental stages is incorrect. Both of these lung diseases and their “cures” are no walk in the park for sure, but you certainly aren’t alone to “guess” what to do. I am so sorry you feel that way - some doctors just aren’t in the know about all this. Perhaps you need to find two doctors (ID and pulmonologist ) who are “in the know!” Wishing you all good things! Irene5