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Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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I think one challenge is that pain is a very personal and subjective thing — my 2/10 might be someone else's 8/10 (or vice-versa).
Some people dealing with nerve pain get great relief from CBDs, for example, but they did nothing for me when I was in hospital, and opiods just gave me weird, intense dreams (to the point I was afraid to close my eyes). Tylenol, Pregabalin, and Voltarin (ointment) were the only things that helped me, along with stretching and flexing as much as I was able.
That's why I doubt anyone's going to The Right Answer in this thread. There are just too many variables, and too much variation from person to person.
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4 ReactionsI am 8 weeks post op with scs by Abbott for PN. Worst decision ever! My trial was successful so I had the scs implant. Abbott rep has tried at least a dozen programs and none have worked. Pain is worse than the original pain. I am taking twice as much pain meds as before. They include Amitriptyline, gabapentin, CBD Delta8, Tramadol, Vicodin. I don’t take them all every day but the pain is bad even when I turn the scs off. The surgeon is no help. Says he is just the installing technician. I would love some advice.
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1 ReactionOh my goodness, so sorry to hear. My pain management doctor pulled the tramadol by stating "they don't do that anymore". Then offerred SCS, and some kind of compounded topical creme of Gabepentin, Lidocaine, and ketamine. I was afraid to get the SCS, and the topical is only marginally effective. I also have Gabapentin capsules. and this med doesn't work well. I have to keep it to 600mg only at night with the Gabapentin. I'm very sorry to hear of your experience with the SCS. Every other day, I contemplate getting it but choose not to. Thank you for reporting on it.
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1 ReactionI’ve just started R-ALA and Benfotiamine(separately) but I am finding the ALA is upsetting my stomach. Anyone got any ideas.
You didn't say what dosage of R-ALA you're taking, but I've read from other commentors that you should start with a low dose and work your way up. I had the same problem, but now take 400mg a day.
I’ve started on 200mg R-ALA and 300mg Benfotiamine
I don’t know if these are considered low doses.
Did you stop taking yours for a few days to get over the stomach problems
Thanks John
I tried this 2x week for 6 weeks along with red light therapy, TENS ,and ultrasound treatment I saw no change.
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1 ReactionI have been mulling over the various so called treatments for neuropathy.Those that immediately spring to mind are:-
Alpha Lipoic Acid, Vitamin Bcomplex, Bentothiamine,
Acetyl L Carnitine, etc.we are all searching for that magic treatment. Why don’t we start posting our successes and we would all benefit and it would stop people going down blind avenues time and time again
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3 ReactionsI wear the Futuru brabdc 20-30cm -CVS and Amazon -
but I still numbness in both feet.
LDN Works great for pain.
Low dose naltrexone.
I’ve been on 4.5 mg for a year & a half.