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Husband with AML facing a stem cell transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 7 11:43pm | Replies (117)Comment receiving replies
Wonderful news! I hit day 84. Being home puts you into a routine. I am at a friend's house, and finally the non homeowner and I have created a bond. I have known them for 30years a piece, but an experience like this creates
a unique time. I also have been working from home and that is taking time. It is good to be busy.
Mary, I bet Dane is grateful to have you. Getting others to support will be helpful. For food, I am thinking it may be fun. What did Dane used to like? I know not eating out anywhere has been odd. I have been making my own food the last4 weeks.
Keep a journal of some sort if you have not. It is good to know daily successes and positive moments of love and gratitude.
I hope the numbers keep going up, so a release will happen soon. If it takes a bit longer, well the Dr team knows it is necessary. Much hope and hugs from 19 days and beyond.
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Thank you @katgob !
It’s day 22 and we are happy to be home 4 nights already. We go back to the clinic tomorrow for his weekly check up.
He only needed a magnesium infusion this week.
He is eating a little and I am definitely considering his old favorites, some of which are working and some others, not so much. Everything tastes different to him. Plus he is still dealing with some mucositis. The mouth sores are gone but he has a lot of extra secretions in his throat. We’ll get the doctor’s opinion on that tomorrow.
He is also trying to get a good walk in every day even when he doesn’t feel like it. So grateful for the warm summer breezes!
I’m so happy to hear you are doing so well, working, eating, bonding with your caregivers! You are a positive ray of sunshine and hope.
Thanks for reaching out with your support!
Mary