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Leg Weakness and Mobility Issues

Autoimmune Diseases | Last Active: Jul 7 3:40pm | Replies (58)

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@gaboslastresort

Oo ok yes my inflammation was normal/not high and family does not have anything autoimmune except my aunt with arthritis so it is puzzling. I relate to how it is a struggle doing basic things like getting up from a seat, the car, etc. It is very scary not knowing what is going on/causing this and what the future looks like for me, and of course frustrating since I cannot participate in the same things I used to be able to. It is hard seeing everyone on social media and friends/family live and I am just stuck on the sidelines. But yes, I can do more reps/exercises than when I first started PT in February, so it must be doing something. I will keep you posted on any findings.
May I ask how did you exactly get better? Did you just gradually workout more to get your strength back and it took a year? I'm scared to overdo it and be back at square one, but I wonder sometimes if not using my legs enough each day is making them atrophy more/weaker.

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Replies to "Oo ok yes my inflammation was normal/not high and family does not have anything autoimmune except..."

I don’t know what caused my weak legs. Lots of medical professionals couldn’t figure it out….so….My instinct is that it was due to some inflammation in my body and lab test did confirm that. I gradually improved over a year without PT or a regular workout routine, but I might have gotten better sooner if I had gotten PT. I kept working, doing household work, shopping, etc. My social life was dismal, but my friends supported me. If it happened again, I’d follow medical advice and push for PT. Talk therapy has helped me a lot with other medical issues. That’s vital, imo. I also have anxiety snd that doesn’t help.

I can relate to the fear and frustration of having weak, sore and stiff leg muscles. It felt so bizarre. It made no sense….I was active and healthy before then! Yes, I had Type 1 diabetes, but it was in good management. My biggest frustration was I never got the idea the doctors fully understood the degree of sore, stiff and weak leg muscles I had. They were thinking a 4 (on a rating scale) and I was at a 94!

One doctor suggested that perhaps it was due to improper footwear! I knew she had no concept of what I was dealing with.

So, stay strong and please utilize all the resources you have to get the most input and treatment possible. I hope there is help on the horizon.