Prostate cancer AND bladder cancer - any others with both?

Posted by mselby1847 @mselby1847, Apr 7, 2023

My husband has high grade bladder cancer in a diverticulum and also prostate cancer with Gleason score of 4+3 plus. TURBT surgery 3/14/23. Urologist has recommended radical Cystectomy and removal of prostate,etc with a conduit and bag. He’s 59. Our daughter is a PA and all of her research and mine agrees with this approach. He is scheduled at Mayo for 4/24/23 for the surgery so I’m assuming that the surgeons agree with this radical approach as well because of the dual cancers. Does this sound reasonable? It just seems so fast to go from a CT scan in Feb to radical surgery two months later. My husband is ok with all of this and wants the cancer gone so he can get on with his life. He doesn’t want to keep doing cystoscopies and prostate biopsies every three months and radiation etc. just one and done. And he doesn’t want to have recurrence scares.

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I have both! I am 83 years old and was diagnosed with prostate cancer about 12 years ago and was diagnosed with high-grade bladder cancer three years ago. Treatment for the prostate cancer is still ongoing. However, my urologist went in and found the bladder tumor, sent a sample off for biopsy. Biopsy came back positive for high-grade urothelial cancer. I was extremely fortunate that they found that the tumor had not invaded the muscularis area of the bladder. Consequently, it was removed, and I was placed on BCG Irrigations every three months. for the first year and that was reduced to every 4 to 6 months in the second year. So far so good the bladder cancer is under control. Currently I have a cystoscopy scheduled for the end of the month to continue a watchful eye on the condition that it doesn’t return.

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@rxharleydude

I have both! I am 83 years old and was diagnosed with prostate cancer about 12 years ago and was diagnosed with high-grade bladder cancer three years ago. Treatment for the prostate cancer is still ongoing. However, my urologist went in and found the bladder tumor, sent a sample off for biopsy. Biopsy came back positive for high-grade urothelial cancer. I was extremely fortunate that they found that the tumor had not invaded the muscularis area of the bladder. Consequently, it was removed, and I was placed on BCG Irrigations every three months. for the first year and that was reduced to every 4 to 6 months in the second year. So far so good the bladder cancer is under control. Currently I have a cystoscopy scheduled for the end of the month to continue a watchful eye on the condition that it doesn’t return.

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So you had a secondary cancer well after the primary cancer of PC? I can see why you have the treatment protocol that you have. With my husband having two at the same time we don’t know which is “primary” but suspecting the bladder cancer. They were afraid that conservative treatment of the prostate with radiation and BCG on blAdder would make removal of both more difficult down the line should it be warranted. Since my husband is a truck driver, partial Cystectomy to remove the diverticulum where the bladder tumor was didn’t seem practical as it would significantly reduce the size of his bladder and no guarantee that the cancer isn’t somewhere else in his bladder. Thank you so much for sharing.

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i had both, prostrate is gione and bladder was ok for a bit then came back now the second one is gone now checked every 6 months and its coming up in july

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My husband had been diagnosed with high-grade bladder cancer. He is 71. He has never been sick before. This is scary, to say the least. We had a procedure on June 7th and just got the test results back. It is all so foreign to me. I am wondering about nutrition and how to support him best.

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@johns92118

i had both, prostrate is gione and bladder was ok for a bit then came back now the second one is gone now checked every 6 months and its coming up in july

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@johns92118, sounds like treatment for bladder cancer has been effective. What treatment did you get?

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@schew5515

My husband had been diagnosed with high-grade bladder cancer. He is 71. He has never been sick before. This is scary, to say the least. We had a procedure on June 7th and just got the test results back. It is all so foreign to me. I am wondering about nutrition and how to support him best.

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My husband has battled aggressive bladder cancer for 5 years now. I recommend doing some reading on Mayo Clinic and other large cancer centers to familiarize yourself with bladder cancer. It will help when talking to his doctors and gives you some questions to ask.
There is a book that I loved for the information I gained from it when I was diagnosed with cancer 12 years ago. It includes information on nutrition. I bought copies for my family members on Amazon. “How Not to be My Patient” by Edward Creagan MD. He is a palliative care physician at Mayo and his writing is so helpful.
Do you have a treatment plan set up yet with your urologist?

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We meet for the treatment plan on July 19th. I will look up the book thank you.

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Had an Rp 10 years ago non invasive but did have a minor involvement with my urethra
Developed non invasive bladder cancer 7 years ago
Tried turbt and bcg at ucla no success. Ended up having bladder removed and internal pouch. Before you rush into external appliance please
Evaluate your husbands life style as to which quality of life would be most satisfactory
External pouch is easiest surgery especially if surgeon is not experienced in doing either an Indiana pouch or a Neo bladder
Have had no issues in 7 years and my lifestyle discussed with ucla was that internal pouch would be best
Best to you. Also please visit
Bcan.org !!

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UPDATE since 4/23!! Husband went in for tests prior to surgery and they discovered he had a PE in his lower right lobe so hospitalized with heparin and cancelled surgery. Put him on blood thinners and did six weeks BCG treatments. Every 3 mo did cystoscopy and scraped and burned small spots if possible cancer in bladder. Did a prostate MRI in late Oct and discovered his prostate was FULL of cancer (three large tumors and invaded to nerve bundles) so it had become urgent to do surgery (non nerve sparing). He has decided against bladder removal and urostomy bag until bladder cancer returns full force (doctor agrees).

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