For me, the worst is the extreme fatigue…I have always been fairly energetic despite a laundry list of physical problems! For example, before PMR, my adult daughter and I would go to Disneyland a couple of times a year, walking around the park, enjoying the rides and just the magic of Disneyland, one of my favorite places. Now I’ve lost most of my interest, mentally and physically. For me this was a a beautiful ( and fun!) bonding experience with my daughter that I’m wondering if I will ever get back!
It helps to come to this forum and communicate with someone having similar issues.
Best wishes to you on your health journey….