@sassytwo
I two am not able to stand more than only 5 to 7 minutes sometimes 2 Minutes! ! ! Can't walk more than across my house It is difficult to just water my back yard with a garden hose. I also have significant pain when I any of these things....talk about cooking I can't even stand an clean a clove of garlic. I put a roller chair in my kitchen but it's so different to try to prepare food/meals sitting in a chair....walking thru a grocery store is tough and going out to a store to buy clothes is out, trying them on is a chore I don't want to do anymore (to much pain). My pain management doctor lowers the dose / mg of my oral pain meds every month as my pain gets worse. He is trying to force me into the spine fusion surgery, I believe he has an agreement with the surgeon ? Lets not forget this surgery is a $87K to $94K procedure. Once I sit, fortunately the pain goes down and eventually almost goes away. I can't sit for long periods of time, but if I do I'm mostly pain free and I also can sleep without pain. I have also been told FULL SPINE FUSION by the first surgeon. I am going to meet with another surgeon tomorrow to get another opinion. The first two surgeons I looked at had terrible reviews & I don't think I can get treated at Mayo in Arizona. I saw a treatment being done at Mayo called Posterior Dynamic Distraction, it may be a primarily pediatric procedure but does it have to be? Have you heard of it ? I would sure like to find out if it is an option.................I think it would be worth it for you to look into also, let me know if you do. It was done on Katelyn Miller by A. Noelle Larson, M.D., Pediatric Orthopedic Surgery in 2022 A form of non-fusion scoliosis surgery is posterior dynamic distraction. So instead of placing two metal rods and screws in the back, the surgical procedure is three screws and one rod. And it is a special rod because the rod can move and the rod can expand and grow over time.
Good luck I wish you the best. I also was impressed with the reply / response you got from Jennifer
@sassytwo How are you doing now ? Did you do the spine fusion surgery ? if so how long was your recovery ?