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Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?
Prostate Cancer | Last Active: 6 days ago | Replies (23)Comment receiving replies
As like others; I've been down this same road. Prostatectomy and 37 rounds of radiation treatments in 2015. I was "good" until around 2021 when the PSA began to rise. I started Orgovyx in January of this year and it is doing what it was intended to do ... including weight gain and hot flashes. I will begin a holiday from the Orgovyx in January 2025. The PSA is expected to rise but the unknown is: how soon and how quickly.
Regarding proton beam vs scatter radiation. I initially had a high interest in the proton beam. However, as the cancer had already spread outside of the prostate; proton beam therapy wasn't appropriate. If after surgery a few cancer cells remain ... at some point the PSA will begin to rise.
As another said ... "The best thing you can do is to get multiple opinions from very qualified Urologists, Radiation Oncologists and Medical Oncologists, preferably at Centers of Excellence."
Replies to "As like others; I've been down this same road. Prostatectomy and 37 rounds of radiation treatments..."
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You and I have connected on a few threats in this forum, and I’m always grateful for your comments. Like you, I am on Orgovyx and also Zytiga. My oncologist and my surgeon strongly recommended my being as active as possible, with exercise, resistance training, and diet management as the best tools to minimize side effects. So far it’s worked for me. I’ve learned to eat less and be satisfied most of the time by using the NOOM app. I gained 6 pounds initially and it took eight weeks to lose it. I purchased a used bowflex through Facebook marketplace and some inexpensive hand weights from Amazon. Northwestern Medicine has some amazing free resources available for cancer patients was a consultation with a personal trainer to develop a reasonable and sustainable plan for activity and exercise. It’s been quite helpful. I’ve noticed that when I’m more active, I have less hot flashes and the ones I have are barely noticeable.
Good luck to you on your journey!