Has anyone tried Scrambler Therapy for neuropathy or for pain?

Posted by wisfloj @wisfloj, May 23, 2019

I have read about this device and I’m hoping someone can attest to its effectiveness for idiopathic neuropathy. I've read success stories and information online. Apparently insurance does not cover treatments, to the tune of $250 for the customary recommended 10 consecutive weekdays.

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@johnbishop

You might find these two 2015 Mayo patient stories helpful.

-- Sidelined No More – Scrambler Therapy Puts Tess Wilson Back in Action:
https://newsnetwork.mayoclinic.org/discussion/sidelined-no-more-scrambler-therapy-puts-tess-wilson-back-in-action/
-- Breaking Away From Pain With the Help of ‘The Scrambler’:
https://newsnetwork.mayoclinic.org/discussion/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

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We appreciate any input you have-thanks!!

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@bettyg81pain

Let me find out which "chiropractic" practice in Woodstock she went to and will ask again what she said-I don't think she thought they helped at all; but, I will ask
I had the testing for SCS and none of the trials worked at all. What different meds do you take?

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I am Med free. I refused Gabapentin because two of my friends were taking it ( for different reasons) They were both experiencing side effects. Groggy, etc. I am limited as to what I can take while at work because our drug policy is so strict- so many medications you cannot take while on duty.
Occasionally I will take 800 mg Ibprofen
I’ve noticed that several people on this site have co-morbidities. This Dx I have for neuropathy is the ONLY medical problem I have. concentrated on ball of foot and toes. At night I have noticed the burning is worse. Finding shoes is a huge problem because my feet are narrow and arches high
I am going to a facility nearby where I live but I’m apprehensive because of what I’ve read about chiropractic offices wanting you to spend $$
I’m really dissatisfied that I wasn’t able to get relief with the Srambler therapy. The RN who did the treatment told me people walk in the door with pain and after a few treatments were improved. All my appointments were in the morning and I was fine, afterwards I’d walk 4 miles and of course after that here comes the tingling, burning and numbness.
I asked her if she thought we should have reversed the treatment doing my appointments in the late afternoon AFTER activity- She was like “ sorry, I don’t know”. When I failed to get the results it was like she lost any interest in my case and took it personal ( that I didn’t get a good result)
I went out on a big limb to go there and I realize it wasn’t a guarantee but I was shocked that she didn’t have any knowledge of alternative resources available. On my last visit she told me that there is a massage technique that their PT does on the cancer patients- She gave me the link ( it’s on U-tube) Of course she sent it via MyChart where I can’t open it so I’ll have to hunt it down. I have an excellent PT here and she can do that or I can teach myself -
Just extremely frustrated not being able to lock down a solution.

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@norelle27

I am Med free. I refused Gabapentin because two of my friends were taking it ( for different reasons) They were both experiencing side effects. Groggy, etc. I am limited as to what I can take while at work because our drug policy is so strict- so many medications you cannot take while on duty.
Occasionally I will take 800 mg Ibprofen
I’ve noticed that several people on this site have co-morbidities. This Dx I have for neuropathy is the ONLY medical problem I have. concentrated on ball of foot and toes. At night I have noticed the burning is worse. Finding shoes is a huge problem because my feet are narrow and arches high
I am going to a facility nearby where I live but I’m apprehensive because of what I’ve read about chiropractic offices wanting you to spend $$
I’m really dissatisfied that I wasn’t able to get relief with the Srambler therapy. The RN who did the treatment told me people walk in the door with pain and after a few treatments were improved. All my appointments were in the morning and I was fine, afterwards I’d walk 4 miles and of course after that here comes the tingling, burning and numbness.
I asked her if she thought we should have reversed the treatment doing my appointments in the late afternoon AFTER activity- She was like “ sorry, I don’t know”. When I failed to get the results it was like she lost any interest in my case and took it personal ( that I didn’t get a good result)
I went out on a big limb to go there and I realize it wasn’t a guarantee but I was shocked that she didn’t have any knowledge of alternative resources available. On my last visit she told me that there is a massage technique that their PT does on the cancer patients- She gave me the link ( it’s on U-tube) Of course she sent it via MyChart where I can’t open it so I’ll have to hunt it down. I have an excellent PT here and she can do that or I can teach myself -
Just extremely frustrated not being able to lock down a solution.

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I am taking gabapentin,have been since 2016 All it did is make me gain weight. I need something else to help.Sometimes the pain drives me nuts.I need help

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@norelle27

I am Med free. I refused Gabapentin because two of my friends were taking it ( for different reasons) They were both experiencing side effects. Groggy, etc. I am limited as to what I can take while at work because our drug policy is so strict- so many medications you cannot take while on duty.
Occasionally I will take 800 mg Ibprofen
I’ve noticed that several people on this site have co-morbidities. This Dx I have for neuropathy is the ONLY medical problem I have. concentrated on ball of foot and toes. At night I have noticed the burning is worse. Finding shoes is a huge problem because my feet are narrow and arches high
I am going to a facility nearby where I live but I’m apprehensive because of what I’ve read about chiropractic offices wanting you to spend $$
I’m really dissatisfied that I wasn’t able to get relief with the Srambler therapy. The RN who did the treatment told me people walk in the door with pain and after a few treatments were improved. All my appointments were in the morning and I was fine, afterwards I’d walk 4 miles and of course after that here comes the tingling, burning and numbness.
I asked her if she thought we should have reversed the treatment doing my appointments in the late afternoon AFTER activity- She was like “ sorry, I don’t know”. When I failed to get the results it was like she lost any interest in my case and took it personal ( that I didn’t get a good result)
I went out on a big limb to go there and I realize it wasn’t a guarantee but I was shocked that she didn’t have any knowledge of alternative resources available. On my last visit she told me that there is a massage technique that their PT does on the cancer patients- She gave me the link ( it’s on U-tube) Of course she sent it via MyChart where I can’t open it so I’ll have to hunt it down. I have an excellent PT here and she can do that or I can teach myself -
Just extremely frustrated not being able to lock down a solution.

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My SCS device has replaced growing need for gabapentine.
knocked out 4 pills a day.
Sometimes night breakthru pain but all day I have no intense burning Shoes an issue Wear sandals with socks
Need to charge battery for device once a day if possible Charge takes about 15 min Holds OK for 2 days or 3. Longer need to charge if days skipped. Not all persons get same relief level. Neuro surgeons and Neuro pain clinics can provide details. UPenn neuro pain specialists did extensive pre testing to persons w neuropathy Lidocaine in early evening helps as well. Do gentle foot movement for circulation during day and evening to combat siting too long to keep circulation going .

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@catalyst

My SCS device has replaced growing need for gabapentine.
knocked out 4 pills a day.
Sometimes night breakthru pain but all day I have no intense burning Shoes an issue Wear sandals with socks
Need to charge battery for device once a day if possible Charge takes about 15 min Holds OK for 2 days or 3. Longer need to charge if days skipped. Not all persons get same relief level. Neuro surgeons and Neuro pain clinics can provide details. UPenn neuro pain specialists did extensive pre testing to persons w neuropathy Lidocaine in early evening helps as well. Do gentle foot movement for circulation during day and evening to combat siting too long to keep circulation going .

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What is a SCS device?!

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Spinal Cord Stimulator

Johns Hopkins Medicine
https://www.hopkinsmedicine.org › health › treating-pai...
SCS device from http://www.hopkinsmedicine.org
A Spinal Cord Stimulator is an implanted device that sends low levels of electricity directly into the spinal cord to relieve pain.
Used for many kinds of pain Several companies Mine is a Nevro for neuro pain in feet.

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@crossette

Yes, that is typical I have been told by a Calmaire technician. You have to return every 5 to 6 months to repeat the treatment. For me it only made my PN worse after 3 days.

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Scrambler Therapy is not a cure - it helps to mitigate pain. If it lasted 6 months, that was great.
When pain starts to return (usually after 3 months) a booster program is recommended to reinforce the positive message being sent to the brain. This is non-invasive and drug free.

REPLY
@norelle27

I am Med free. I refused Gabapentin because two of my friends were taking it ( for different reasons) They were both experiencing side effects. Groggy, etc. I am limited as to what I can take while at work because our drug policy is so strict- so many medications you cannot take while on duty.
Occasionally I will take 800 mg Ibprofen
I’ve noticed that several people on this site have co-morbidities. This Dx I have for neuropathy is the ONLY medical problem I have. concentrated on ball of foot and toes. At night I have noticed the burning is worse. Finding shoes is a huge problem because my feet are narrow and arches high
I am going to a facility nearby where I live but I’m apprehensive because of what I’ve read about chiropractic offices wanting you to spend $$
I’m really dissatisfied that I wasn’t able to get relief with the Srambler therapy. The RN who did the treatment told me people walk in the door with pain and after a few treatments were improved. All my appointments were in the morning and I was fine, afterwards I’d walk 4 miles and of course after that here comes the tingling, burning and numbness.
I asked her if she thought we should have reversed the treatment doing my appointments in the late afternoon AFTER activity- She was like “ sorry, I don’t know”. When I failed to get the results it was like she lost any interest in my case and took it personal ( that I didn’t get a good result)
I went out on a big limb to go there and I realize it wasn’t a guarantee but I was shocked that she didn’t have any knowledge of alternative resources available. On my last visit she told me that there is a massage technique that their PT does on the cancer patients- She gave me the link ( it’s on U-tube) Of course she sent it via MyChart where I can’t open it so I’ll have to hunt it down. I have an excellent PT here and she can do that or I can teach myself -
Just extremely frustrated not being able to lock down a solution.

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That is too bad that you had a bad result from Scrambler Therapy. The treatment should be given for 10 days (weekends off) with the pain getting less and less each day. If you have nerve pain, this therapy should work. Perhaps try a different provider.

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@allsmall7

That is too bad that you had a bad result from Scrambler Therapy. The treatment should be given for 10 days (weekends off) with the pain getting less and less each day. If you have nerve pain, this therapy should work. Perhaps try a different provider.

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Welcome @allsmall7, It sounds like you have some experience with the Scrambler Therapy. Do you also have pain from neuropathy?

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I was introduced to Scrambler therapy last year when my husband went through a successful treatment protocol for Failed Back Syndrome. I have since opened a clinic in New Hampshire and have successfully treated patients with Neuropathy

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