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Squamous Cell Vulvar Cancer: Who out there has this cancer?
Gynecologic Cancers | Last Active: 3 days ago | Replies (273)Comment receiving replies
Dear Shirley: I am stunned to read all you have gone through so far! You are obviously strong and have done everything to get you to fight this surreal cancer that not even medical staff know how to treat! It is like we are guinea pigs for EMPD. Together we will stay strong. I have an August 1 visual appointment with my gynecologist. She is the one who is discovering all the spots and both sides of the vulva. My treatment so far: at each manifestation I use Imiquimod topical treatment. I have worked on lessening the intense scratching and burning. I am adding you in my prayers.
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@bijou68 - I have 2 lesions again after laser ablation in Feb. and excision of a different spot, slightly deeper, in Apr.
2 Qs for now:
1 - I'm using Imiquimod on the 2 spots, but it sure seems it's not (& can't be, by nature) a very targeted application. PLUS, I'm to use the Clobetasol for the rest of this small "inner vulva" (my words) area. How does this all stay targeted when, basically, it is nor more than a 1-inch area? This discovery was just 10+ days ago, so I've just used the Imiquimod 4x (spsd to use it 3x/week for 2 months). Isn't it supposed to burn? I've not felt any burning yet; of course, that is 'nice', but does it mean it's not doing the job?
If this doesn't work, I have to have these 2 areas excised, and it will compromise my urethra opening, which will affect urine flow/direction. And, it will also be very painful until it heals, but I've endured that before: as long as it removes these things, it must be done.
2 - How do you work on 'lessening the intense scratching and burning'?
Thank you so much for any insights, experience, advice you can provide. I can ask (& have asked) my Dr and her nurse, but after a few Qs, I don't want to 'wear out my welcome' if you know what I mean.
Best...