← Return to Caregivers: Early Onset Alzheimer's, diagnosis age 19 to 65

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@maryvc

I am so sorry to hear you are going through this at such a young age. It sounds like you are doing everything to find the diagnosis and I know this is difficult.
Dementia is a mysterious disease and not all is Alzheimers. It would be helpful for more people to do what you are doing even though it is so hard.

My husband is older-now 77 with MCI but I am wondering if it would do us any good to pursue more diagnostic testing. All he has had is an MRI and meetings with the neuropsychologist and geriatrician. I asked his PCP to order a PET scan. He was no help when I asked about looking at APOE-the PCP ordered a lipoprotein A test instead.

I have thought of further eval at a Mayo Clinic, but at our age what will we accomplish?

Thank you for sharing. I hope you find support here.

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Replies to "I am so sorry to hear you are going through this at such a young age...."

I'm sorry to hear that your husband is having challenges. It may be worth meeting with a neurologist as well. In terms of age, dementia is more likely the older we get, but there are potential drugs that can help slow the progression if they are able to diagnose a particular type of dementia. Sending you peace and hope for answers!