A whole lot of stress went away once I started dealing w the folks at Mayo. The CT & MRI I'd had, I had Records here send to Mayo. The scans were reviewed by vascular, endocrine and ENT triage teams. I'm scheduled for 2 days of labwork, consults, PET CT, genetic counselling, et al, the first week of August. Got a boxful of stuff yesterday from Mayo to do a 24 urine sample. So things are progressing. While I'm still fairly scared, as is my husband & son & daughter, at least it is going to turn out as well as it can.
It's been 2 mos since the CT my PCP ordered, & tomorrow w/b 1 mo since the ENT said he'd call when he saw the MRI the next morning. It is incredible to me, after a dozen calls to PCP's ofc, & 3 calls to ENTs ofc, no return calls!
I'm keeping extremely busy and trying not to worry. Thanks for asking, Colleen!