← Return to Leg Weakness and Mobility Issues

Discussion

Leg Weakness and Mobility Issues

Autoimmune Diseases | Last Active: Jul 7 3:40pm | Replies (58)

Comment receiving replies
@celia16

I can’t believe I saw your post! Omg! I can’t provide any answers, except say that I had almost identical symptoms years ago when in my 40’s. I don’t think anyone understood just how stiff, sore and weak my leg muscles were. It was torture. I was very worried. I had all the tests you describe and they weren’t helpful except to exclude certain things like ALS, MS, etc. I saw Neurologist, orthopedic, primary, endocrinologist (have Type 1 diabetes), and rheumatologist who would have diagnosed me with polymyalgia rheumatica , except, she said I was too young, according to her. That theory has now been challenged from what I read. So, I never got an answer or diagnosis. I had other issues too, like frozen shoulders, muscle knots….anyway, they all resolved over time, even the sore, stiff, weak legs. Eventually, I was back to working out. Before it happened, I ran 3 miles a day, plus biking and strength training.

I hope you find answers. Be your own best advocate. Keep trying to get help. I gave up too early. Oh, also, ask for B12 test. That’s bit me from behind and I’m not sure how long I’ve had it. I’m suggesting to everyone, since I had no warning.

Best of luck with everything. I look forward to seeing what you discover. Take care!

Jump to this post


Replies to "I can’t believe I saw your post! Omg! I can’t provide any answers, except say that..."

Thank you for sharing! My B12 is okay (425 and the normal range is 230-1,050), but maybe I should start taking it cause it can't hurt.
May I ask how long it took your legs to get back to normal function? And how did it resolve, did you gradually start exercising more/walk more each day? Or was it medication?
It's been about 6 months of this for me. Granted, I have been very sedentary because when I overdo it with walking or at PT then I am super sore and wiped out for a few days after. It's just a delicate dance and so hard when I don't have a diagnosis/answers.