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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: 6 days ago | Replies (191)

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@charlesvalley

Hi, any idea on how slow this thing can grow? I know from the small research i've done it can grow aggressively fast, but i wonder how slow.

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Replies to "Hi, any idea on how slow this thing can grow? I know from the small research..."

Hey, hope you’re doing well otherwise. Ameloblastoma is weird because it may grow aggressively internally but you can never really see it externally it doesn’t really get as swollen as the Google images😭in terms of my biopsy on the jaw it felt like a minor operation with slight pain and then as the tumour grew there was the expected pain and tiredness. Just take each day as it comes and make sure you make the choice that benefits you the most whether it’s surgically or medicinally!

Hi @charlesvalley . I will add my welcome. You have excellent advice here from @anbar04 and @tomschwerdt as to the specifics of ameloblastoma. From my perspective, I have had the surgery that they have experienced yet for reasons other than ameloblastoma.
It is rare, very rare. It is also not considered cancer as it does not metastasize to other parts of the body. And as far as I know it is specific to the bones around the teeth only. GP’s I have talked with about this usually have never heard of it and had to look it up after I spelled it out for them, so don’t be surprised if you are met with the same lack of understanding.
Anyway good luck with this. We are here for you. And as I often said to anbar, “Courage”.