I'm currently part of a research trial at Cleveland Clinic called the Expander 2, and totally unhappy with the care I have received up until now. The device was implanted in mid-March. It was supposed to be a 3 month blinded procedure but I was unblinded and knew from the start that I had received the device. In the event of complications on the day of the procedure I was not given the proper instructions to contact anyone. I had complications and was only able to contact anyone due to being accidentally unblinded and having the ability to then use MyChart. I subsequently continued to have many side effects expected in less than 1% of the participants. The coordinator was supposed to be tracking this and was not. Now almost four months post procedure I have blood in my urine and they are telling me this is normal and to be expected. The twenty five page document explaining the trial and possible side effects never mentions blood in the urine beyond 2 days post procedure. Don't assume that that because the institution has a prestigious reputation they will treat you accordingly