Hello! I had been seeing an Endocrinologist for about 10 years due to being told I have an adrenal adenoma. Over the years, he continued to run only a handful of tests and even though they were showing abnormalities, he always said they were within normal range. I have packed on 50 pounds over the years and am the poster child for what someone looks like that has Cushings disease. I have every single symptom for the disease. Yet when I asked him, he said no, that was not it. For about three years now I have been suffering back pain on the right side (that is the side that the adenoma is) that has me in agony most days. I have recently gone to a new Endo who is much younger and she sent me for a battery of tests, most all of which he has never ordered. The result for my ACTH, plasma is < 1.5, cortisol 4.4 and Dhea 13.1 apparently all are out of sorts. It took three weeks for the results to come through
and I literally just looked at them. So I have no idea what the Doctor's take is on all of this.

I do have many health issues, the adenoma, thyroid nodules, lung nodules, high blood pressure, high cholesterol, high triglycerides, you name it. I use to be very physically fit and active and now I just feel absolutely horrible. I will definitely see what the doc has to say about the potential for the pituitary possibly being part of the problem and so appreciate yours and everyone else's comments. As sad as it is to know many others have similar problems, it is comforting to know I am far from alone.

Could you please post an update since it appears your last post was from two months ago. I truly hope you have found some relief!

Best to you!
T