Osteoporosis Drugs - Managing joint pain side effects

Posted by karel @karel, Jun 12 8:01am

CAN SOMEONE WHO HAS BEEN ON BONIVA OR FOSAMAX AND HAD HORRIBLE SIDE EFFECTS , IF THEY TOOK ANYTHING TO COUNTER REACT ALL THE JOINT PAIN. I TOOK 150 MG. PILL OF BONIVA ILANDROATE, ON SATURDAY.5 DAYS LATER . HIP PAIN IS WORSE.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@edwinabutterfly

Hello Windyshores,
There probably is not a day that goes by that I can forget this condition, especially since the hip fracture which took a long time to heal but I attributed much of the discomfort to having a rod and screw. It woke up my eyes to look down constantly when walking because falling is not an option. I hope I either have the courage to go on an anabolic or that increasing exercise will help increase bone density which at this point I doubt will happen. I'm trying to do the Onero Program starting next week and I had my evaluation yesterday but my back is sore so much of the time that I'm not sure I will be able to do it. I'm hoping that I can keep up the good diet and the supplements I'm on right now. I'm not advised to go on HRT by my doctor because of my age and I had a blood clot. The fact that you went on a couple of the anabolics with good toleration and such good results is helpful to know and has been encouraging to me. But I'm sorry to hear about the spinal fractures and all the pain you experienced in the healing process. Hopefully you will get total restoration. Blessings.

Jump to this post

@edwinabutterfly just want to clarify that the fractures were before any meds (due to COVID delay). I was able to tolerate Tymlos because the pen dosing is adjustable so I could start low and move up as tolerated. I am actually more afraid of bending and twisting than falling! I have had no fractures since 2021, since I went on meds. I don't envy you a hip fracture and hope you find a path that prevents further fractures.

REPLY
@sharon31

Hello Edwina butterfly,
Please see my answer to Karel, the question was Osteoporosis drugs, managing joint pain, quite a bit about exercise there.

I was diagnosed September 2021, so nearly 3 years ago, 2nd dexa scan April 2024, same day prescribed blood pressure tablets, amlodipine5mg.
I can assure you that I'm not a gym bunny, i dont enjoy the gym aspect that much, feels great as i get back into the fresh air though.?
I take supplements, pure synergy bone renewal, also methylated b vits, as recommended because I'm taking hrt. I'm not taking alendronate or the doctors vits/calcium carbonate.

Regarding food
I make my own soup /bone broth with organic chicken wings, also I sometimes buy and organic chicken, or chicken legs and keep the bones, and make stock, freezer really helps here. I have this for breakfast with veg in it, and some chicken, or other protein leftovers
2 portions of greens daily, variety of veg and fruit, organic where I can, no or very little processed food, some nuts and seeds, protein every meal, i also make chocolate balls with cacao, coconut oil and squished dates, also prunes, these are supposedly brilliant for bones, you can have 6 a day if you want,
I buy Plant life ones on Amazon, not cheap, but really tasty and tart, you can soak them,try and have oily fish at least 2 times a week, i don't have wheat, but do have rice, quinoa, amaranth, not a lot though, also i have kefir, I did have yoghurt but I'm not sure if dairy ok, for tea, well i have redbush, i use almond milk, idea is to minimise caffeine, chocolate has caffeine anyway.
Coffee meant to be good, maybe, but I don't have often.
I make porridge with nut milk I make in nutribullet.
Also make fishcakes, tinned salmon.
Sardines I make into salad with finely chopped up peppers, onion, etc, dandelions from garden!
You will doubtless have you own idea.
Also tempeh or tofu occasionally, especially if I spot it on offer

I have had setbacks, was off hrt for a while with bleeding problem, also my thyroid was overactive for a while and that wouldn't have helped.
I'm not at all athletic, breathing not good enough for running, no good at high intensity stuff at all, so I work slow and steady, not masses of repetitions

I do hope all this helps, and do remember follow your own positive path, I'm sure you have ideas to contribute, you don't have to do all the things i do, important thing is to accentuate the positive.
You are maintaining bone which is a real achievement, so just gradually find some things you think you would like to do and try them out, look on YouTube for inspiration.
Alkaline diet discredited, so no need to minimise protein, you need it. By the way i also eat organic/pasture fed meat.
All this costs a lot more than i used to spend, but my other outgoings are minimal compared to most people.

Jump to this post

Hello Sharon 31,
It really sounds like you have a very good diet. Some foods I incorporate are a Jarlsberg Swiss Cheese sandwich, at least twice a week (actually purported to help osteoporosis), sweet potato, organic pork chops or organic Applegate all-beef hotdogs w/sour kraut (for vitamin K2 which we eat once a week), an egg every other day, prunes!- but I only can tolerate a couple a day, organic old fashioned oatmeal for breakfast -packed with raisins, walnuts, organic Flaxseed meal, cinnamon, &milk, a tunafish and celery sandwich using YellowFin tuna - once a week, salmon for dinner once a week, iceberg lettuce green salad with chopped celery and cucumber (Supposed to decrease chance of fracture)- and eating a salad whenever it pairs well with dinner meal, a serving of yogurt - should have daily but I don't, A2 (1%)Reduced Fat Milk - which is more digestible than regular milk and found in grocery stores, and Orgain Creamy Vanilla Drink with 16 grams of Protein --a half to a whole (11 oz) container each day. I basically drink 1200 mg of milk/cheese/yogurt a day. And I also try to buy only organic meat. But something I ought to do is to make chicken soup from scratch once a week! Also the cacao bites sound so good. On top of the food, I take quite a lot of supplements and a multi. All that to just stay the same! I wish I'd started eating better thirty years ago, as I'm sure everyone with osteoporosis does. And I did see your exercise plan which looked very extensive. That's where I really have trouble the most. If I walk outside for 20 minutes and do 20 minutes of back and hip exercises and flexibility, that's called a very good day for me but I know rarely do that and I need to do more. *So that's really my goal. And along with that the ultimate goal is to stay independent which may need to include Forteo since I'm having trouble improving my scores. Peace and Blessings.

REPLY
@edwinabutterfly

Hello Sharon 31,
It really sounds like you have a very good diet. Some foods I incorporate are a Jarlsberg Swiss Cheese sandwich, at least twice a week (actually purported to help osteoporosis), sweet potato, organic pork chops or organic Applegate all-beef hotdogs w/sour kraut (for vitamin K2 which we eat once a week), an egg every other day, prunes!- but I only can tolerate a couple a day, organic old fashioned oatmeal for breakfast -packed with raisins, walnuts, organic Flaxseed meal, cinnamon, &milk, a tunafish and celery sandwich using YellowFin tuna - once a week, salmon for dinner once a week, iceberg lettuce green salad with chopped celery and cucumber (Supposed to decrease chance of fracture)- and eating a salad whenever it pairs well with dinner meal, a serving of yogurt - should have daily but I don't, A2 (1%)Reduced Fat Milk - which is more digestible than regular milk and found in grocery stores, and Orgain Creamy Vanilla Drink with 16 grams of Protein --a half to a whole (11 oz) container each day. I basically drink 1200 mg of milk/cheese/yogurt a day. And I also try to buy only organic meat. But something I ought to do is to make chicken soup from scratch once a week! Also the cacao bites sound so good. On top of the food, I take quite a lot of supplements and a multi. All that to just stay the same! I wish I'd started eating better thirty years ago, as I'm sure everyone with osteoporosis does. And I did see your exercise plan which looked very extensive. That's where I really have trouble the most. If I walk outside for 20 minutes and do 20 minutes of back and hip exercises and flexibility, that's called a very good day for me but I know rarely do that and I need to do more. *So that's really my goal. And along with that the ultimate goal is to stay independent which may need to include Forteo since I'm having trouble improving my scores. Peace and Blessings.

Jump to this post

Hello Edwina butterfly,
Your diet sounds very good. I don't have much dairy, I really am uncertain about it regarding bone health. I was recommended almond milk and told it's something to do with magnesium I think, that milk doesn't have a good balance and can rob bones, I really don't know.
After reading your reply I craved cheese and had a chunk of parmesan,! I hardly eat any . I also have gouda, this like jarlsberg meant to be good
A couple of things I also do is have turmeric and black pepper in combination, plus a bit of extra v olive oil on food. I actually premix some clove powder into my black paper, the reason why lost in the mist of time I think maybe a very high Orac score.
Tomatoes I think also recommended so I make veggie curry and that of course includes plenty of spices which are good,
What you are doing sounds good, very good in fact.

Re exercise have a look at the chair version of 12 poses for osteoporosis, if this is safe for you. I think youtube channel called forever yoga, lovely woman teacher. May be a steep learning curve if you've not done yoga before, otherwise an individual lesson or 2 with the right teacher might get you on the right road. I find it more rewarding than heavy duty exercise gym style but may not suit everyone, these poses have been proven to increase bone density and can be done every day if you wish. I've only been doing them a few weeks and am so pleased I found them
Be well.

REPLY
Please sign in or register to post a reply.