Hey Danny,

The DBS and MR focused ablation have too many issues - they ain’t ready for prime-time yet!

Last night I self-referred to Mayo-Jax. This a.m. I got a call from the scheduler, I was sooooo excited, until she told me that not only are there no appointments available for pts with ET, there is nothing available on the waiting list - i can’t even be added to it!!! Totally bummed.

I asked about 2025 - their schedule isn’t open that far in advance.

She said I can try again. I’ve put it in my phone to write to them on the first of every month. I will skip July for obvious reasons.

If you or anyone knows of a non-Mayo MD, I’m willing to look at them. I like (on paper) the Movement Disorders Clinic at UFL in Gainesville.

I’ve been to the Chief of Movement Disorders at Emory. Got an excellent physical because he had a medical student with him. Gave me an rx for Primidone, with caveat don’t drive or drink wine. Yeah, not happening.

Tried another Movement Disorder doc while still in GA. May need to drive up and see him; though if I get an rx for the Cala TAPS device on Tuesday 7/2, I won’t need a Neuro for a while.

Thanks for all your help!
Karen