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Trigeminal neuralgia: What helps stop the pain?

Brain & Nervous System | Last Active: Aug 21 7:08pm | Replies (127)
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@valarino

I have had trigeminal neuralgia for 15 years. At year 5 it came on like a freight train. Went to neurologist at advice of GP. Was put on Oxcarbazapine which worked like a charm but after 3 years started affecting my liver and also blood sodium dropped dangerously. At that point saw Neurosurgeon at Penn Medicine Dr John YK Lee and ended up getting a Laparoscopic MVD. This surgeon gave me my life back but now 6 years later it's back. I'm back on oxcarbazapine but only 300 mgs a day and next step MRI and hopefully appointment with Dr Lee. I am 70 and my neurologist told me there are other non invasive procedures one being Gamma knife. We shall see.

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Replies to "I have had trigeminal neuralgia for 15 years. At year 5 it came on like a..."
John, Volunteer Mentor | @johnbishop | Jun 28 9:08am

Hello @valarino, Welcome to Connect. It must be difficult to say the least to have the symptoms come back after 6 years of having your life back. It sounds like you have a great neurosurgeon and hopefully will find out more at your appointment. There are other discussions you might also find helpful for trigeminal neuralgia. Here is a search results link to the other discussions - https://connect.mayoclinic.org/search/discussions/?search=Trigemial%20Neuralgia%20%20%20.

How soon is your appointment?

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Jill Christine | @jillchristline | Jun 28 9:44pm

There are so many types of neuropathy. I am stunned. Docs just gave me the regular old name of Peripheral Neuropathy (PN).
I take 2700mg of Gabapentin for two months. Helps but I'm loopy. Cat's Claw is a new natural remedy. Marijuana also helps from the natural world.

Cheers all!
Jill the Pill

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