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← Return to New definitions of Long COVID
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Yes, it is a huge burden on the family members. Especially the primary caregivers. My husband has really been there for me, and taken on all the household chores. In addition, I am just not who I was before. After so many failed therapies and procedures, I have become very negative and depressed. I try to show my appreciation, but I know I am a burden even though he never complains. Also he endures my meltdowns when I just can’t take the misery anymore.
I am so thankful to have a loyal partner. I could not have come this far without him.
Replies to "Yes, it is a huge burden on the family members. Especially the primary caregivers. My husband..."
I am sure all caregivers esp those to Long Covid partners appreciate that . “Disheartening and helpless” is what I say to him when he and OTHER people say “ burden “ . To me , it is simply what you do if you truly love someone. As much as I absolutely hate this disease and what it has done to us both I would rather be with him than not….. other caregivers who feel terribly alone ??
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Here's to partners and family and friends who allow us to be and to be supportive of that different person.
A Canadian friend, not seen for years, was in town for a conference and I had to say no, I can't see you - it's too much for me to do.
It is hard to explain that even having someone over requires (regardless of what they say!) some cleaning up which I do not have the strength to do.
Today is 'one of those days' where I am accomplishing too little work and am too tired and realizing there are not yet any real helps for my symptoms.
Here's to us and each other.