@kristyinoregon

Kristy, thanks for your post, which is the most extensive summary of a Clippershead's medical path I have seen. Since Mayo Clinic Connect is a purely social media-like exchange platform for sufferers of all kinds of conditions, without any moderation or intervention by anyone medically-certified (unless they are also suffering something), your summary may be more than needed. I could be quite mistaken about this. You'll have to judge it yourself.

I was diagnosed as being a Clippers member on May 3, 2024, one day after you! My symptoms began in September 2024 and began with extensive visual impairment of my left eye and parathesis of my left hand before extending to parathesis of the left arm, left chest, left leg and left foot, and the same with my left jaw and the left side of my face. The left side of the body ones have softened a little and vision in my left eye improved greatly. I've gone through two hospitalizations where steroids delivered by IV were the main and successful treatment. I am now on 20 mg prednisone, with my neurologists planning to move me off them in the months ahead.

I had an intensive consultation and evaluation of my complete medical record a few days ago with a second opinion neurologist at the NYU Langone MS Center. This doctor said my condition was complex and puzzling. He thought a diagnosis of Clippers might not be accurate, even given my responsiveness to steroids, because eye impairments are extremely rare amongst those with Clippers. He is proceeding with new blood tests and procedures to help determine if something else is causing some or all of my symptoms. I found his evaluation to be extremely productive and helpful.

Might this apply to you? Who knows. You had or still have visual field infringements too, although perhaps less profound that mine. Or maybe you and I are the "extremely rare cases" where Clippers patients have had eye problems, making Clippers the right diagnosis.

In any event, welcome to the Clippers portion of Mayo Clinic Connect. Like you, I am not sure how aspects of this social platform works, but if it proves of benefit, as it definitely has for me, it is worth the uncertainty. Don