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Why surgery first vs chemo/radiarion first?

Pancreatic Cancer | Last Active: 2 days ago | Replies (18)

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@silver182

Yes very early, very lucky! Level 1 at the ampulla valve. My symptoms were horrible, liver & pancreatic fluids backed up “ampulla valve would not open” for almost three months! Felt like I was being bit/ eaten by huge Red ants. They would crawl & bite everywhere 24 hours every day.
My first ERCP the doc burned valve open & all my symptoms went away!! Totally. Now the problem was finding and measuring cancerous tissue. 3 more ERCP’s and finally upon my request, sample sent to John’s Hopkins that finally verified level 1. ERCP doc then immediately got my Whipple referal, all done in 2013.

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Replies to "Yes very early, very lucky! Level 1 at the ampulla valve. My symptoms were horrible, liver..."

My surgeon said my cancer level would be 1-3 as they have not found any other cancer yet. And from imaging he would guess I have level 2 or level 3. I have had symptoms for 6 months of fat not being digested. Actually, a lot longer than that it just went to full steatorrhea last December. And I am on blood thinners and the blocked pancreas duct not only stop me from digesting fat I was not getting any vitamin K. Caused my blood to get supper thin and a hospital trip for that. Blood test in the hospital showed super high Bilirubin and sonagram showed budging ducts in my liver. Bilirubin was climbing every day I was in the hospital, and I was very Jaundice. My tumor was at the junction of the liver and pancreas ducts and had pressed them both closed. A stint was placed via endoscopy to open the liver duct in the pancreas. The pancreas duct is still blocked by that stint. The morning after the stint was placed my Bilirubin was down from 20 to 11. I was put on Creon pancreas enzyme medication months ago and they help but are not 100%. I still show symptoms of fat not being digested. I am controlled to the point where I can leave my house and my bathroom without not eating for 24 hours. There was talk of another endoscopy with an ultrasound probe and biopsy. The surgeon advised no other tests were needed and that to move on with Whipple surgery as soon as possible. Guess I am a bit farther along in this than you were. And it seems the surgeon thinks I am close to the cancer spreading and doesn't want the tumor poked and prodded any more for fear it would trigger it to spread.

I think this is a long shot that the cancer has not spread. But it is the only chance I have.