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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 2 days ago | Replies (308)

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@becsbuddy

Welcome to Mayo Clinic Connect. @kristyinoregon . We’re glad that you’re here but not glad that it took Clippers to get you here. Your message did go to everyone and it’s posted here in the discussion group. I know that it took a while to get a diagnosis. Almost ALL autoimmune diseases are like that. And I’m glad you’re not driving yet. Until your eyes are totally normal, driving is the last thing you want to do!
I got osteoporosis and cataracts from prednisone. The cataracts are gone now so I just have the osteoporosis to worry about. You might want to ask your PCP for a referral for a DEXA scan which looks at the health of your bones. And coverup when in the sun! Prednisone makes your skin very susceptible to skin cancer.
So, again, Welcome!

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Replies to "Welcome to Mayo Clinic Connect. @kristyinoregon . We’re glad that you’re here but not glad that..."

Becky,
Thanks for the kind welcome. I will look into a referral for a DEXA scan, probably a good idea to get a baseline. I have been staying out of the sun, though sitting in it is one of my favorite things. Now, I just do so with a hat and covered skin, when it is not too hot out.
I am looking forward to being an active member of this forum and learning from others. I have never participated in anything like this, except for university classes, but will do my best to stumble through it. Do you think I should post my symptoms list and the overview of the year it took for me to get to see a Neurologist? I thought I might post it on my profile, but I can see any place that has enough space. I only wonder about this because I would be interested in learning how others got to their diagnosis and what their symptoms are. Thoughts? This question is not just for Becky. I would also enjoy the opinion of others, since I am new at this.
Thanks. KRISTY 🙂