Replies to Again, I am not talking about side effects but reactions that are fundamental to the way…

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Osteoporosis & Bone Health | Last Active: Jun 29 9:45pm | Replies (51)

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@normahorn

Again, I am not talking about side effects but reactions that are fundamental to the way a drug works. Some people can afford a decrease in immunity; those who are immunocompromised cannot. If sclerstin suppression would also suppress healthy bone marrow activity, I am not willing to have my cancer go from stage 0 to even stage 1.

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Replies to "Again, I am not talking about side effects but reactions that are fundamental to the way..."

rola | @rola | Jun 27 3:13pm

Very true, @normahorn. I have found more information researching myself than what's been offered thru the medical field. My jaw drops & I'm discouraged by the lack of interest in the connection & treatment of bone marrow diseases. We need better training for diseases that affect us as we age.

My Moffit visit, in April, staged me at level 1 CLL. I've been 0 for 6 yrs. When I brought up my concerns about possible progression of CLL with osteodrugs, her response (my CLL specialist physician) was, "it's not proven but in vitro & we can treat CLL," so she recommends treatment. I feel like we're the trials.

I'm kinda leaning toward the risk and taking tymlos.

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