Welcome to Connect, Sunil. What I’m going to say is clearly an understatement but wow, what incredible journey you’ve been through! There are always risks taken when we participate in medical procedures that are on the cutting edge of science and we hope for the best! I didn’t have CAR-T, but a bone marrow transplant (donor cells) which came with its own set of challenges. An acquaintance who had her transplant the same day that I had mine developed CRS similar to your story. Same day…two separate stories.
Since every person is unique we just never know how the body will tolerate the procedure, the meds or what life will be like afterwards. But when it’s our only chance for survival, the potential benefits of the procedure outweigh those risks, making the choice a little easier…but still stressful, right?
I’m happy to hear the dark days are behind you and that you’re progressing well. Scanxiety is a real thing though…when waiting for those test results! So I’m sitting here with fingers crossed for you that the PET scan tomorrow will yield only the best news!! Thank you for sharing your story and I hope you’re a regular contributor in our CAR-T support group!
Will you please let me know what you find out with your scan?