My doctor told me that whenever I have surgery that I must always tell the doctors about the Factor 5 - don't know why it is important but I tell them.

I wasn't the original respondent on this, but I have Factor 5. When I was diagnosed two years ago I was put on Eliquis. I was also very anemic and having to get iron infusions every few months. I was told I needed to tell any other doctors I went to and to inform my grown children that they may want to be tested. Of course, you know these younger adults "I've never had a problem, so why worry". It has come back big time to bite us in the . . . My youngest daughter was pregnant. Everything was great, no problems. She already had one child with no problems, Factor 5 never even crossed our minds. Two weeks before her due date she went to the doctor, everything good. Three days later she goes into labor. The hospital couldn't find a heartbeat. Our baby grandson was stillborn on August 16, 2023. They found a 7 cm clot in his umbilical cord. As soon as the doctor told us they found a lot of clots, I said Factor 5. They did two tests on her and they both came back positive. My older daughter had also had a baby 4 years ago and no problems. She did a 23&me and did some of the gene testing. She also has it. So I unknowingly passed this on to my two daughters. And my grandson was stillborn because of it. So if you have been told you have it, make sure your children are tested for it too! And if they have it, get your grandkids to be tested. I still need to convince my son to be tested too. I never dreamed something like this could happen, but it did.