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Celiac Artery Aneurysm: Anyone else with same illness?

Aortic Aneurysms | Last Active: Nov 16 12:44am | Replies (510)

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@tvickey

I was diagnosed with this in 2016. My doctor’s notes suggest:

Better redemonstration and confirmation of 2.1 cm fusiform aneurysmal dilatation of the celiac artery. Associated occlusive dissection with thrombus formation likely within the false lumen involving the celiac artery, proximal common hepatic artery, and origin splenic artery. Etiology of this is unclear. This can be seen in association with underlying vasculitis. No other findings to suggest vasculitis as far as visualized.

I presented with similar symptoms, severe pain in low back with nausea. From onsite of initial pain (while sitting in my barber’s chair hoping he would finish quick because I needed to vomit) until the time I ended up in the ER was 90 minutes. Was on a Friday night. ER doctor sent me home, couldn’t find any reason for the pain. I suffered thought the Memorial Day week and was first in line to see my primary care doctor on Tuesday. He immediately sent me to a general surgeon who admitted me to the hospital (same one I had gone to on the Friday).

I was lucky that the general surgeon was a very experienced doctor with 40+ years of medical practice. He had seen this before and knew what to test and sent me to the vascular surgeon who explained to me “it is like you have wallpaper in the walls of your arteries. For some reason, the wallpaper is peeling from the top and blood is getting behind the wallpaper causing the issue”. Great explanation. The pain was explained as my spleen dying from lack of blood flow. Don’t know if that is a common symptom.

Was in hospital for four days, started on blood thinners (stayed on for 6 months) and re-scanned with no issues. Follow up visit in 2019, no issues.

If I can be of help to anyone here, please let me know.

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Replies to "I was diagnosed with this in 2016. My doctor’s notes suggest: Better redemonstration and confirmation of..."

I noticed someone else here suggested they were Factor V Leiden (Factor 5 Leiden). Anyone else told this?

@tvickey Welcome to Mayo Clinic Connect and thank you for telling your story of celiac artery aneurysm. That explanation by your doctor comparing the dissection to wallpaper is the best I have heard! Did you have surgery then?
I had MALS - median arcuate ligament syndrome- the celiac artery was compressed by a ligament. I’m sure the symptoms are similar. Do you still have your spleen?

I have been diagnosed with a fusiform aneurysmal dilation of the celiac artery 1.8 cm x 1.4 cm just below its origin on Oct 28 2021 . The VA is my primary and they can not take the case so they are looking outside the VA . I have no pain or symptoms. They found it doing a CT scan for my heart and chest arteries. The only other case beside yours is a 30 year old male with 3 gunshot wounds to his abdomen. They are supposed to be formed by trauma . I had a bad accident 34 years ago and had trauma to my kidneys and broke my left femur. How was your 2019 test . Did the doctor tell you what activities you can do or not do ?