Good Morning Don - @restisaweapon
Now, I had the time to read your post with attention and time for it. Thank you so much for sharing your story with me and our group!
You said that your seizures started at 13 years of age, though your fever which is the cause of your epilepsy happened when you were 1 year old. This is quite similar to my experience. I was 5 years old when I had the accident that caused my epilepsy, but started to have my seizures at my puberty. What I have learned through a doctor is that there is latent or silent period of epilepsy before the first seizure happens. She also said that my puberty was the onset for my seizures due to hormonal changes, similar to you.
Here is a short explanation of the latent/silent phase of epilepsy.
"After a brain injury occurs, there is frequently a "silent" or "latent period" lasting months or years in which seizures do not occur;[6] Canadian neurosurgeon Wilder Penfield called this time between injury and seizure "a silent period of strange ripening". During this latent period, changes in the physiology of the brain result in the development of epilepsy. This process, during which hyperexcitable neural networks form, is referred to as epileptogenesis."
I am very happy to hear that your surgery was a great success. I can well understand why you kept silent in gatherings. While taking some AEDs, I got so confused that I avoided contact with people, keeping just contact with my husband and parents. Thankfully, this is over for both of us 🙂
Wishing you still a very nice week!!! Enjoy life!
Chris (@santosha)