My daughter (18) also has ITP and platelets are currently 15. She has tried steroids, 2 rounds of IVIG and her plts rose from 5 to 103 but then crashed again within a week back down to 12. She has also tried 2 rounds of Rituxan and started Doptelet orally at the same time, but nothing is working. I am beside myself with worry for her as her mom.

She had ITP when she was 4 following a live nasal mist flu shot, and this time we think the ITP was reactivated by mono. She also had strep and pneumonia at the same time. She has been hospitalized twice for nose bleeds in the past month, once for 6 days and once for 4 days. She is a freshman at University of Arizona so this is just devastating for her 🙁

Her doctor told her this week he doesn't know what else he can do for her. We don't want to resort to removing the spleen. We have an appointment at Mayo Phoenix scheduled for 11/26, but I don't know if we can keep her nosebleeds under control until then without being hospitalized again.

Can anyone offer any insight or suggestions? I just read about eltrombopag and romiplostim today. Anyone think these treatments could work faster, safer, better than Rituxan which is leaving her absolutely exhausted and with severe migraines?

I have been an ITP patient since 2015, so it's been 9 years already. I don't know Rituxan, but my experience with immunosupressants hasn't been that good. I just spent a week at the hospital because my platelet count was so low, once again. This time I was treated at the ICU. So now I'm on Eltrombopag, and also on prednisone, at least while this episode gets managed :/