Reclast IV half dosage

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@windyshores and @ beegie
Half dose.... I have been wondering about that possibility given my recent history of serious reactions.
I would be interested in your experience.
My endocrinologist appointment (Long awaited) is this Wednesday, so would like to be prepared for all possibilities.
Thanks!

Talk to your doctor about this. I had a partial dose with IV hydration, slow infusion and tylenol, due to heart and kidney issues, and med sensitivities. If you do this, your infusions will be more frequent and the dose will probably go up next time.

@windyshores
Thanks... I'll let you know after Wednesdays appointment.

I would be curious about this also. I took Evenity and it caused considerable pain in my hands and wrists. I stopped it after 9 months. I followed up with a full dose of Reclast which I had taken before with just the standard flu like symptoms that went away. Anyway, within 3 days the pain in my right hand increased and within 6 weeks or so it spread into my left hand. After a year the pain has decreased considerably and the mobility in my hands is much better, though not gone.
I decided to take Actonel. It has a shorter half life and I wanted to know if this bisphosphonate would cause joint pain. It caused no problems but because of another medication I have stopped it for a month on my endocrinologist suggestion. My endocrinologist also suggested a half dose of Reclast administered over an hour if returning to Actonel was not possible. I'm not sure that would not result in the same out come. I would also assume that another dose of Reclast would be necessary in 6 months or so.
Just as an aside has anyone heard of using Actonel DR that is a delayed release of type of Actonel that can be taken with food.

I too am super sensitive. I had the worst experience of my life for 2 days (I won't lie!). THEN I was told that that is GOOD and it will only happen that first time! It meant that the medication targeted needed areas and stimulated my own system to jump-start the bone-building! I was told next time to take tylenol beforehand. Get pain meds onboard beforehand. This is familar too me from a previous experience. My body ramps up to attack the problem induced by the medications. I am having a parallel experience with the Tymlos now. I am at the full dose of Tymlos but it might be too much for me. I am trying to explore a reduction but my doctors/nurses don't have any experience with my inquiries about medication reduction. The pharmaceutical companies do however - you can call them to find out more and you can ask your doctors to find out more. Being hypersensitive I always need to take less of stuff. But honestly have found the knowledge base at my doctors inadequate. So I'm just hanging in there and pushing them to get more info for now. Good luck.

@loriesco you can adjust your dose of Tymlos yourself. As I wrote elsewhere I did tell my doctor and he now uses the ramping up method with other patients. I never achieved the full dose in my two years but did tolerate 7 clicks after awhile. I had excellent gains.

Doctors and pharmacists cannot always suggest things that weren't in a study. I would just go ahead and reduce to a half dose, or 3.4 dose and see what happens. Keep the pen refrigerated so it lasts!

Hi @windyshores! I am not sure about reducing. Not because I don't have "agency" but because I want to know to best GET THROUGH this! I think it should be either with my Dr. or with Radius (or both). But maybe you are right - just do what I want and see what the testing brings....
last night I had a "medium flare" of the Trigeminal Neuralgia an hour after 8 click dose. The other "less" clicks seemed to resolve. It was manageable with pain meds. This morning very minor annoyance. I am most concerned with energy levels. I want the pharmaceutical company to weigh in on the dosage per weight of the patient. Maybe they don't have that stat. I'm unsure what bone density numbers even mean with my bad experience of great numbers and bad bones in surgery. My PCM thinks I shouldn't be taking the DEXA at all. But, I think they will at least be able to see if there is a better number. How long do you think, from your observations, good numbers might show up? P.s. - this pen has been in 77 and under house temperature. I'm about just a week out from the 30 days and will dump it here on the 31st for the new pen. Want to start a schedule that is easy to remember! P,S, - I was keeping it in the fridge all the time and then I read that when. you start using it you should keep it unrefrigerated to keep it in range. So I keep it cool.... I also started getting a taste on the sides of my tongue with the 8 clicks. I read that is a side effect....

It's fine to keep it in the fridge. The potential to keep it out is only to make the shot more comfortable, based on the idea that cold shots hurt more- which I do not think is true. (And for travel- but I keep it cold with cold packs...)

Excited to tell you @windyshores i had a trigeminal neuralgia flare last night and took Celebrex for the pain. It worked amazingly well!!!! Amazingly. I hope that is something you can try . I hero it in the house for osteoarthritis inflammatory flares!