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Tapering Pains Body Response or PMR?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 25 8:36pm | Replies (13)Comment receiving replies
Can you all tell me how long you are typically on prednisone when you are discussing the tapering here? I started in May; recently, I tried to go from 10 to 7.5 per my MD, but symptoms increased. I went back to 10 after messaging MD through mychart, but honestly, no improvement in symptoms now over what I felt at 7.5. In fact, I think today is worse. I have been back on 10 for about 4 days. I'm so confused. My appointment is in two weeks and I don't even know what to tell her.
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well thats the thing. just like what started the disease everyone is different. I think there can be different levels of PMR. I think that men have an easier time than women. some statistics show that. I feel like I was pretty lucky to have my PMR markers(ESR and Sed rate) showing no inflammation in 4 months. I started my taper at 4 months and was off in 6 months. With 2 flares trying to do so. I really think that since May is not enough time to start your taper . I was also on an equivalent of 10mg prednisone for the last two months but I started at 20mg. Then went to 15mg after one week. Then 10mg before 2 weeks ended. Then on 10mg for 4 months. I wont copy the sites but this disease can last 1-3yrs. If Dadcue responds he was on prednisone for 10 plus years and still taking Actemra to control the symptoms, I would say likely your PMR is not in remission yet and you may need a little more help. I would have your DR. pull your blood in 2 weeks to check your markers before agreeing to try to taper. But the sooner you can get off the better. Your Dr knows that.