Mary

I have been in this group for more than a year. The rarity of this condition is likely a significant reason as to why our respective doctors have varying views as to monitoring and potential corrective treatment. A couple have had their CA repaired so I urge you to read all the postings to learn of their experiences , where they were treated and how the majority of us who have not had treatment deal with the condition. My CA is 1.5 cm and I just had a scan last week and met with my Dr. who is a vascular surgeon at UCLA. I met with on Monday and he told me not to worry and have it scanned again in 3 years. He told me that it hasn't increased in size vey much since it was first discovered 7 years ago and it is unlikely to ever become a problem. My experience and medical advice differs from others so reading other postings could be helpful to you. I do recall that someone who I believe is a nurse was contemplating a move to Jacksonville as the Mayo Clinic there has experience with CA repair.

Regards

Dennis